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Nearly everyone knows someone who is living with a health challenge
that is difficult, if not impossible, to detect in their appearance
and demeanor. "Just Fine" discusses this dichotomy of
looking one way while feeling quite another. This topic is explored
not only with words, but with original portraits, because the true
story of looking one way while feeling quite differently requires
both. No other book has approached hidden health disorders in this
manner. It is a powerful and telling tale that must be told as well
as shown.
Sveilich interviewed
and photographed over 50 people of all ages and from all walks of
life who live with a wide variety of concealed disorders. She also
consulted with numerous medical and mental health professionals
to explore the juxtaposition of looking one way while feeling quite
another.
About the
Author
Sveilich, a counselor for more than 20 years, has conducted large
community seminars and support services for people living with health
challenges. Recipient of the ABC News Leadership Award, she has
also been featured in numerous newspaper articles and television
reports.
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Many reasons!
Read this review by Margy Squires "Health Writer" (Fountain
Hills, AZ USA)
Everybody
has a story. As editor of a newsletter, it's not unusual for me
to receive an e-mail or letter requesting that I review a book for
possible inclusion in our publication. After all, we target a market
specifically for those with chronic pain. Most of the time, I'm
happy to at least look but I do so with optimistic skepticism. Our
readers have a lot to deal with already. If I can't endorse a book,
in my editorial opinion, I opt out of giving it published space.
My first criteria is that a book should "do no harm" in
its effort to do good. I also prefer to give the space to books,
which warrant attention. Just Fine deserves both space and
attention.
In her own words,
the author states the uniqueness of her book: "There is an
absence of resources that examines an individual's outward appearance
and how it runs contrary to their pain, symptoms, and inner world."
While the 336 page book is divided approximately in half, the theme
of dealing with appearing "normal" despite how you feel
runs consistently from beginning to end. In the first half, the
author's revelation of what it is like to uncover and ultimately
accept a diagnosis and the limitations, changes and medical challenges
that come with that diagnosis - despite looking fine - is unlike
any other book I've read. The author's own black and white photographs
of people she's interviewed and whose stories are included will
greet you in the second half. Stop and look at the faces. The fact
that you cannot "see" what disorder they have is what
Just Fine is all about.
In Chapter One,
"why seeing is not always believing", the author explains,
"Human nature, for the most part, is visually oriented. We
believe what we see and often make character judgments based solely
on visual perceptions. But, what happens when the person who appears
healthy, energetic, and just fine to family, friends, and coworkers,
is quietly suffering from chronic pain or the challenges of an ongoing
illness?" This point continues to be painstakingly revealed
in the personal stories collected and shared by the author from
others who live and deal daily with these chronic illnesses. The
idea that someone can look fine and not feel as good as they appear
seems an unlikely paradox. Often the first exchange between two
people is, "Hi, how are you?" followed by, "You look
great!" Should a person admit their "secret" suffering
and/or pain and risk that too familiar look of skepticism?
The author strikes
further to the core of the matter: many struggle to live as "normal"
as they look and rationalize the consequences when they cannot.
She says it simply, "One may recover from the shock of an illness
but not from the illness itself. This is where it is essential to
develop and utilize new skills". The more disabling the disorder,
no matter how invisible, the more your life will change. How will
it change and what can you do about it? The author's two decades
of counseling experience shines through, especially in the stories.
While many offer hope and inspiration, she also includes those stories
that don't have it all figured out yet --because with a chronic
condition, the story doesn't always have a nice, neat ending.
Just Fine
is an amazing book that will touch the reader on many different
levels, especially emotionally. This is not, however, a coping book
as much as it is a "comfort" book. The author goes beyond
the personal and offers the practical as well in dealing with subjects
as family, work, friends, depression and medical therapies, including
alternative options. It is indeed a resource for those with a "concealed
illness" whose story is finally well told -- as well as anyone
else -- family, doctors, support group leaders who wants to truly
"see" them, too.
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